I promised an update; it is just happening much later than I planned. Sorry.. Jackson has been doing well since being home from the hospital. He enjoyed his post hospital stay in our room for about a week after being home. He couldn't understand why he was being "moved out" after he had gotten so comfy w/ his mattress in our room. :) He told dad "no move out, me stay." That boy sure can talk in sentences when he is motivated!
We will be planning a swallow study soon, just to make sure everything is the same with his swallowing of multiple types of drinks, w/ and w/o straws.
Since being home he has been weened from one of his three anti-convulsant meds, this is a big step for him since his hemispheretomy! We celebrated at... you guessed it Ihop. :) Praying all continues to go well and he remains seizure free.
We have many appointments approaching in May - rehab doc will be up first, Jackson's walking has been going well but when he stands he throws back his left knee & hip which is creating a different gait pattern.. we will see our PT this week and I'm sure she can help us to adjust this issues.. things are ever evolving as this kid grows and boy has he done a lot of that lately. He's almost as tall as me, ok that may not be saying much, but he is close. ;) He also has an appt. with the epileptologist this week.
We were blessed to get to see one of our favorite doc's a few weeks ago. Dr. Grabb is the neurosurgeon who performed Jackson's initial craniotomy and is an amazing doctor. Unfortunately, he will be moving to Kansas to work at their Children's Hospital, lucky for that area, sad for Colorado Springs. What do you say to the man who saved your son's life? Thank you just doesn't seem to be enough.. we got him a pocket watch and had it engraved. That is one person we will never forget.
Thank you again for those of you that continue to read our blog. I need to catch some sleep before tomorrow.. it is IEP day, say a prayer that we all walk out with a smile.
Tina
No comments:
Post a Comment