Well, we went back to "the place", a.k.a Children's Hospital, on Thurs. the 5th to be admitted since the eye swelling (which is called ptosis), was not improving and Jax was still continuing to have seizures. An MRI shunt series was performed, 24 hr EEG and blood work sent to the lab. In the end, we got good and bad news..good news - all the tests came back good, shunt working properly, no seizure activity noted on eeg (excellent news) and blood work ok (1 test pending that takes 2 wks to get the results)... bad news, still not 100% positive as to why these symptoms have presented themselves.....Is it from the 4 hr ear surgery? The Titanium Incus bone? The anesthesia and the way it is metabolized? Still some unknowns..
We had a follow-up with our neuro yesterday and he was very optimistic that we will get the seizure activity under control with a combo of increased meds and time, the further out we get from surgery date. He does want him to avoid stress and get plenty of rest..defining stress at age 7 can be somewhat difficult..ahhhhh, it is now wait and see...(not my strong suit)
Jackson is still lacking in the endurance department..he will get a spark of energy that will last an hr and then he is back to requiring some rest. I miss my crazy, running-around-like-a-mad-man boy!
God, I pray that Jackson will heal very soon and be back to his pre-surgery status. I don't like thinking that something is wrong with him and I have no IDEA what it is or how to fix it!! Praying for patience and recovery. God has a plan for Jackson, that I do know.
Here's hoping to wonderful updates next time!
Tina
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