Prayers and faith

I'm not sure what to say tonight.. this week has been so rough, emotionally for us and physically for Jax.

Last Friday we went in for what was planned to be a minor, out-patient surgery to repair his left eardrum and adnoids. The doc found a cyst behind the eardrum that was very hard to get to and required a more invasive surgery than originally planned. Since he had to remove some of the middle ear bones to get to the cyst, those bones can't be put back into place to do the job properly. So Mr. Jax has a prosthetic Titanium incus ear bone!.. only Jax, only Jax..this is only the 3rd time the doc has encountered this situation, well of course, Jax has to add a little flare to the situation.  They also had to cut the small flap of skin right in front of your ear, in order to get to the cyst. This took the time Jax was in surgery to almost 4 hrs.

Soooo.. we come home same day as surgery, granted it took Jax a long time (approx. 3 hours) to come out of the anesthesia. Jax has been resting, drinking fluids and finding small bursts of energy. The sad part is Jax has had 2 very uncharacteristic type seizures (from those prior to Nov.), I can't describe them right now, still so raw. This is also followed by "hooded, swollen" eyelids. Needless to say, we have spoken with each of his doctor's, got an MRI scan, ER visit Sat., increased meds and praying like crazy. I am scared..

The doctor's are telling us that the ear surgery could of traumatized/stressed Jackson's body and he needs healing time. They have also mentioned that anytime a patient with epilepsy undergoes a surgery it lowers your seizure threashold. They are hoping (and I'm praying) that this is the explanation for these issues and once he is feeling better things will even out. Who would of thought, the one surgery that was supposed to be minor, turns into the one w/ the slowest healing time and largest complications??

Team Jax Prayer Warriors - please pray that Jackson heals quickly from the surgery and the complications are resolved SOON! He is trying so hard to find the little bits of energy he has and make the most of them. I wish he could tell me exactly what he is feeling or if there is any pain. I want my spunky little warrior 100%.

I will update again this week. If things aren't better by end of the week, we will go back to Children's for MRI and EEG early next week.

Thank you for your support!
Tina