We wait and see

Jax had an mri and appt. with neuro np on Friday. Basically he is borderline right now in regards to if the eye issues we are seeing are related to pressure build-up (hydrocephalus), a virus or a residual effect from surgery. Time will tell..if he starts regressing, vomitting, lathargic, then back we go asap..if he continues to behave normally and no other alarming signs we will go back end of next week for another scan to double check. Over the weekend his behavior has been fairly typical, which is great, but still keeps us questioning what is going on. To explain the eye issue best, he looks like a really tired boy who really isn't as tired as he looks, sounds odd uh?

Cutie striking a pose..

We got the new AFO's on Fri. and the right one looks like something robo cop would wear! Attempted to find shoes that fit it with no luck. Ended up ordering some online so lets hope they work.

Busy week coming up.. kids go back to school, lots of appt's and squeezing work into the mix! Wish me luck..

Tina