Lamentations 3:25
Today was a really good day and one that we have been anxious about. We were at Children's for majoirty of the day for follow-up appt's with Dr. Laoprosert (epileptologist), EEG and Dr. H (neuro-surg).. unfortunately we won't get the results of the EEG till Friday. Both doc's, who each had a large part in our initial decision and the preparation for the surgery, were extremely pleased with Jackson post surgery! Dr. Laoprosert was complimenting Jackson's smile, walking and response time to questions. To give a little background info, before we made the final decision on surgery, we put Dr. L through a lot of Q and A sessions, numerous phone calls and more questions regarding different treatments. He was patient with us but, in the big picture, he knew that the surgery had to be done. Eventually, when we had all our questions answered, followed through with many prayers, we were able to make the best decision! We are praying for good news on Friday from the EEG! If all is well, we can start weening one of the meds..that would be great!!
The appt. with Dr. H was short and sweet. He looked at Jackson's eyelids and wants another scan done next week to compare to last weeks. The eyelids are apporx. 10% better but still have the sleepy look. He asked Jax to walk to the door and Mr. Cool got off his chair, put his hand in his pocket and swaggered out. :) He then made sure to tell Dr. H "bye bye" several times.. he had enough with doc appt's.
Here is a video of Jax being silly & working hard in PT last week with the wonderful Mrs. Carin ..
Once we talk to the doc on Friday I will make sure to update. Our appt. day continues into tomorrow with ot, rehab doc appt and speech. We are so blessed that Jax is such a good patient and works SOOOO hard. :) Way to go buddy!
One last thing, Bob a.k.a Righty, tried to grab carrots at dinnertime and gave doc's high 5 with no prompting!!!
Tina
What a beautiful post on what is a dreary day here in NC! So glad to hear of the progress and healing happening in Jackson! Your friends--the Meyers
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