We started out the gates with gusto and ended with sleepiness. Jax had a great, busy morning; talking, riding around the flr in his wheelchair, took the first "real" bath including washing his hair and even got some OT and PT in...whew. But as the day wore on so did Jax. He did great for the OT and PT, they were very encouraged by his sitting, moving arms/legs with strength and even some brief standing while holding under his arms. She was surprised to see that when she asked if he was ready to lay back down he started taking the steps necessary to move forward & backward..that ah way Jax! The therapy may of just been enough to fatigue him for majority of afternoon/evening. He wasn't communicating nearly as much and appettite was down. When he turns down mac & cheese you know he isn't feeling up to par. I need to keep in mind that he has undergone a MAJOR surgery and needs plenty of rest. He is still on IV fluids so at least that is giving him fluids that he isn't getting otherwise.
I told our night nurse that if she sees an IV machine come flying out our room in the middle of the night she knows the beeping got to me. (haha) If it is driving me crazy I can only imagine how poor Jax feels.
Praying for patience, strength and endurance for Jackson. He is so beautiful, strong and AWESOME!
"Be strong and courageous. Do not be terrified; do not be discouraged, for the Lord your God will be with you wherever you go."
Joshua 1:9
Team Jax is greatly appreciated! Keep the positive thoughts and prayers coming..please.
Tina
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