Sunday, September 2, 2012

Team Jax is awesome!


It is that time of year again..the Pikes Peak Challenge!! TEAM JAX is the largest team, woohoo, you guys are awesome. We have the largest team we have ever had with 25 members!! I'm so excited. This will be Eric's 4th year hiking and Brendan's 2nd! Both are equally excited to hike the 13-mile, 14,115 ft. Pikes Peak.

All proceeds benefit the Brain Injury Alliance of Colorado -  the ONLY statewide non-profit exclusively dedicated to brain injury. Their mission is to improve the quality of life for people with brain injuries by connecting survivors with resources to help navigate the path of rehabilitation...I understand everyone has many financial obligations but we would greatly appreciate any donation. Brain injury is tough, not only for the survivor but for the family and friends as well. It is not cured overnight, it is not an easy journey and it definitely does not receive nearly enough funding for our community needs. Please consider donating by going to www.pikespeakchallenge.com, click on Make a Donation and select Brendan or Eric from the hikers list. I will be sure to post as many photos as I can including the Team Jax shirt Eric designed this year, one of my favorites. Thank you in advance for your support!!

Speaking of the hike, I have the greatest Jax story... we were hanging out a few nights ago and Eric happened to have his Team Jax shirt on. Out of the blue, Jax pointed to the shirt and said "Me hike", Eric and I couldn't believe he made the connection, especially since we weren't talking about it at the time. So when I say Jax feels all the support and love, he truly does!

Quick update.. Jax is really enjoying 1st grade. He looks forward to going everyday, has some very nice kids in his class and most of all likes to see Mrs. Cheryl (para). :) He is still requiring more rest than last year but if that is what he needs than that is what he shall receive. Unfortunately, he is still battling the residual effects of surgery.. the ptosis has subsided a great deal but now his right eye is getting "lazy" (for lack of a better term.) This is especially noticeable when he is fatigued. This is also a symptom we have not seen for some time. One of the docs at Children's told us that sometimes, not often, but that surgery can take a survivor back many steps in their recovery, similar to their early days. I now believe she was right!.. Still having seizures which really sucks! It just doesn't seem fair.. I can say that all day even though I know life is not fair. He has battled so hard for so long, he deserves a good year of smooth sailing..one of these days! Keep battling my sweet child!

Thank you to those of you who still read the blog and have a special place in your hearts for Jackson. What a gift you are to us.

Tina

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