Follow-up's and more

Summer can't come soon enough! The boys are getting summeritis and have already started planning our days. I have to admit I am also ready.

Sorry for not posting sooner regarding the EEG results, all went well and Dr. L said we could continue to ween one of the seizure meds! He said we will never know what type of side effects Jax is having from a specific med until we take him off it completely. He will still be on 2 other's which makes us feel safe during this process. Dr. L asked Jackson for a hug before he left and said "You are pretty amazing." Ahhh, the doc knows what a super star patient he has. :)

Jax had a follow-up appt. and MRI with Dr. Handler this week. He said the MRI results showed less fluid than the previous one and showed some of the tissue that was effected by the high pressure has healed. Definitely great news! He made sure to remind me to get a copy of the most recent mri to have on hand when we go on vacation. Per Dr. H "If someone looks at his scans and doesn't know the story, they will have a heart attack." Even Jackson's scans can send one into heart failure, maybe we should just put one in his back pocket for safe keeping. :)

Sweet boy will be 7 yrs old on Thursday! My how time flies! Who would of known that the little chubby cheek baby would have such a journey in his path.. filled with scary moments, uncertainty, tears, smiles and sooooooo much strength. Jackson, you are a gift from God my precious boy.  I learn more from you everyday! Happy early Birthday pumpkin!

As most of you know, we have been involved with the Pikes Peak Challenge for a few years now. It is a hike up 14, 115 ft. Pikes Peak and a large fundraiser for The Brain Injury Alliance of Colorado (where I work part-time.) A non-profit dedicated to improving the lives of brain injury survivors.

We will once again have a Team Jax hiking, if anyone is interested please go to www.pikespeakchallenge.com for more information or email me @ tinas.quest@yahoo.com. If you are not able to hike, their are many volunteer opportunities. We are making it a family affair this year. :) Brendan was the first registered hiker, Lisa is Volunteer Coordinator & Cheryl is in charge of radio communication (see I really wasn't joking!) You can also donate to Brendan on the website! Thank you all for your past and present support! We greatly appreciate it!

Tina