Kicking and Screaming..

You know it is time to go home when the nurses have to check in on you for being too loud. ;) Last night we had some friends stop by (thanks for dinner Mandy) and Jax was hamming it up. He had a surge of energy that lasted till about 10:30pm!

Here is a video from Thurs. in PT with one of his fav in-patient therapist's, Char. She treated him when we were here 4 yrs ago..she's great! Righty leg was kicking so well and then got interrupted by hearing music.. Jax gets dance fever when he hears a good beat. The blue tape on the left shoe is good ol' duct tape, they added a lift to his shoe for a variety of reasons but the main one being a height difference w/ an afo on his right leg. It is taking some getting used to but seems to improve his weight shift from left to right.

http://youtu.be/XkS2bzVmBhQ

We almost got away with a virus free stay but a yucky mouth virus got Jax this week, he had sores on his lips that were super painful. It limited his eating and drinking..no complaining once he got numbing cream & the doc prescribed all day milkshakes. They seem to be a little better today.

 2 days and we are homebound! Jax has been fitted for new afo's, a night splint and more botox than one could ask for. We will see the neurosurgeon on Monday, Dr. Handler, who by the way is a really nice guy and a brilliant surgeon...the epileptologist and rehab docs..a lot of follow-up appt's in Jan. plus an eeg. We haven't seen any seizure activity (thank the Lord!!) but an eeg will confirm if any electrical activity.   

There are still a few staff members here from when we were here 4 yrs ago and one of the gals told us this week that she was shocked at how good Jax was doing..she said to be completely honest she didn't expect him to be talking or walking. We are reminded how blessed we are to have a strong, determined little boy who was given a special spirit by Him.

Please say a prayer for all the children here, especially during the Christmas holiday. It does something special for the soul being around all the hard working, amazing spirits. Choose today as a day to be thankful for your health and the great lengths that medical technology has brought to us.

This is the verse that came up on my daily bible app and I thought I would share..
1 Corinthians 13:7-8
"Love bears all things, believes all things, hopes all things, endures all things. Love never ends. As for prophecies, they will pass away; as for tongues, they will cease; as for knowledge, it will pass away."

Tina